Posted by: brendanodornan | August 16, 2012

What is Muscular Dystrophy?

Muscular Dystrophy is a serious condition that causes progressive muscle weakness. For example in Duchenne Muscular Dystrophy, muscle fibres break down and are replaced by fibrous and / or fatty tissue causing the muscle to gradually weaken.

There are about 2500 known boys with the Duchenne type disorder living in the UK at any one time. For the general population the risk of having a child with Duchenne Muscular Dystrophy is about 1 in every 3500 male births.

Unfortunately no cure has yet been discovered. Despite promising research into the condition, at the present time, the only treatment that experts recommend to slow the decline in muscle strength and mobility is steroids. However, there are many possible side-effects with this.

The Muscular Dystrophy Campaign leads the fight against muscle disease by

  • funding world-class research
  • offering free information and advice about care and support
  • providing grants towards equipment
  • campaigning to raise awareness and bring about change

Some Examples of How The Muscular Dystrophy Campaign Uses the Money Raised

£35 funds an hour of research that could lead to a treatment or cure to improve and lengthen people’s lives

£50 gives parents one hour with a specialist physiotherapist who can show them the valuable muscle-stretching techniques that could keep their child walking for longer

£900 allows the charity to make a grant towards the cost of a child’s powered wheelchair.

£2000 covers the running costs of a muscle centre for a week, providing diagnosis and multi-disciplinary care.

 

In memory of John Gordon.

To make a donation visit my site at….

http://uk.virginmoneygiving.com/brendanodornan

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